Rebecca is Co-founder of the dedicated rare disease publication RARE Revolution Magazine, the youth programme #RAREYouthRevolution and the International charity Teddington Trust – an organisation, founded in 2012, supporting those affected by the Ultra-Rare Disease Xeroderma Pigmentosum. Passionate about appropriate and accessible resources Rebecca and co-founder Nicola Miller have dedicated the last eight years to creating award winning patient education materials and to provide a platform that educates, signposts, and connects the whole rare disease community.